Cleveland Clinic

Last Wednesday we left for the Cleveland Clinic. My sister and I both had colonoscopies scheduled and a Dr. Apt. Wednesday night I had my own room and started my prep. My instructions said I didn't have to start until Thursday morning because my scope was for 4pm. I wanted to be extra safe and no doubt I was cleaned out. Luckily for me I drank a clear liquid drink from Starbucks that apparently had Splenda in it and that started the flood gates. 

Thursday morning I drank more of the prep until I was positive without a doubt I was cleaned. Thank god that happened at the same point I was about to throw it all back up. We go to the hospital and of course the Dr. Was behind. I did not have it done until about 445 or so. That night I ate at the hotel restaurant and boy was that overpriced. 

Friday was my appointment with the Dr.

I got there early and they were able to take me right back. I saw the nurse practitioner first and she went over my history and asked tons of questions. The Dr. Finally came in and he asked more questions. He did tell me that my scope looked good and no signs of active UC. That was great news to hear. He said that the Remicade will help in as few as two infusions and I have had two. His name question why what I have been told about my high blood pressure, I told him it was because of my weight. He seems to think it is something to do with my kidneys. My nose bleeds, fatigue, and sleep problems are all signs of kidney issues. He ordered a bunch of lab work and a kidney ultrasound. I was not able to have it done while I was up there but I plan on going back in two weeks. 

Too long

It's been about two months since my last post. Entirely too long. I'm writting as I'm sitting in a hotel room with 7 other people 5 of them kids. It's a little hectic but as they sit and draw pictures I'm actually bored. 

Being bored didn't last long at all because here it is 4 days later. So here is a quick update. 

Remicaide was put on hold. I went to the neuro dr and it was determined I had carpel tunnel in my right wrist.

I guess that's better then what ever else it could be. After that was determined I did my 3rd remicaide infusion. This time I wasn't nearly as tired as the first time and even went to work the next day. I defiantly think it has helped with the symptoms, as far as nausea, diarrhea and pain in my stomach. I am still tired and not a lot of energy. My joint paint has even gotten better to a extent. 

I did go and try acupuncture, for the pain and after two times I really think I could tell a difference. I havnt gone back bc it's so expensive. I'm hoping after the first of the year I can. 

Next week I head to Cleveland Clinic for my second opinion. I had made this appointment when I was at my worst and felt like I needed to move forward with a second opinion and think about surgery. I am not feeling that desperate anymore but I'm keeping the appointment.