I have lived with UC for the past 16 years but I feel like within the past couple months I'm really stating to embrace it and learn more. The support group on Facebook lets me see how many people are going through the same thing I am. Those are the people that truly understand. I don't think anyone really can unless they have been in your shoes. The past couple months have been the worst for me as far as pains, aches and feeling blah in a while. I don't even know where to begin. There are many days I think laying in the bed all day sounds perfect. I've got unfinished projects left and right, my yard is a hot mess with weeds everywhere and let's not mention my house. The things I use to do I'm not able to. I want to feel normal again but the sad thing is I don't know what that feels like because it has been so long.
The latest about my infusions.: I've had numbness and tingling in my arm and possibly leg. It is a side of remicade so the infusion that was supposed to be next week and been postponed until I are a neurologist. I'm hoping tomorrow to know the date for that. I also have a appointment with the Cleveland clinic. I would like a second opinion and to start thinking about surgery.
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