My second infusion was a week ago. This time my appointment was at 1pm. I ended up working until 1230, stopped and got some lunch and then went to the doctors office. The lady again was not able to find a good vein and didn't try to stick me. She called the first one again from another center and she was able to get me on one stick and in the same vein as before. I took Tylenol and claretin before the infusion started. When it started I got this weird feeling like I was just weak all over. I had it the first time around also. I was tired again and with no wifi there I was not even able to read on my iPad. So After checking Facebook, Pinterest, email and texting people back I decided to doze off and on. It wasn't a good nap as the nurse comes in every 30 mins to take vitals. I was done right at 4 I went to pick up my son and headed home. By the time we got home it was about 5. Too late for a nap so I just took it easy the rest of the night. The next day I did stay at home from work. I managed not to nap that day either but did hardly anything at all.
Since then I havnt got the burst of energy and felt like I'm feeling really good like I did after the first one. I think it's working my bowels are formed and no mucus or blood. I'm still so tired and no energy for anything. I'm not sure at what point that will get better if ever. My joints also hurt after the first dose I was releaved of the pain for a couple days.
I really just want to be better I'm tired of having no energy and having to strategically plan my day. I don't even know what it's like to not be tired anymore. I can't remember the last time I wasn't. It's been years and years.
It does not help that today I hate lunch and feel very nausea.
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